Not rude at all and happy to give input, however my circumstances are different than those with MS/ALS etc so not sure how relevant it will be. I can still "technically" walk, move, appear fairly normal outwardly, I am just in severe pain all the time, have ongoing damage to joints and nerves from surgery that caused this, and my endurance and mental state has gone with it. It's a slowly creeping degeneration after a massive initial decrease, and isn't at all like those mentioned neurodegenerative issues where brain function is failing rapidly. I have some other physical issues as well that compound this.
From a philosophical point of view for ME personally, VR/AR/the internet/gaming etc isn't an adequate substitute for "real life" and I personally don't derive enough from substitutes to feel my quality of life is good, it's more just clinging to SOME interaction as I do here on HN. However I am sure for some people it is enough to make a significant impact and I find it a worthy avenue to pursue.
From a physical point of view, my circumstances make even the above things worse as I have some visual issues that cause headaches/eyestrain etc severely with most modern display types for some yet undetermined reason. It's none of the obvious once like PWM/blue light etc. So I am in a really corner case spot with tech and clinging to a super old device or two that aren't long for the world. I also have monovision and severe amblyopia so VR headsets don't work even if I could stand the display tech. I can stand a few min here and there to post a comment. But I cannot spend hours online or on screen anymore. A perfect ironic hit since that was about the only earning potential left and its already cost me the one real shot I have had in years. So often people are facing multiple disabilities from multiple angles.
I hope its helpful although I doubt I said much of substance.
From a philosophical point of view for ME personally, VR/AR/the internet/gaming etc isn't an adequate substitute for "real life" and I personally don't derive enough from substitutes to feel my quality of life is good, it's more just clinging to SOME interaction as I do here on HN. However I am sure for some people it is enough to make a significant impact and I find it a worthy avenue to pursue.
From a physical point of view, my circumstances make even the above things worse as I have some visual issues that cause headaches/eyestrain etc severely with most modern display types for some yet undetermined reason. It's none of the obvious once like PWM/blue light etc. So I am in a really corner case spot with tech and clinging to a super old device or two that aren't long for the world. I also have monovision and severe amblyopia so VR headsets don't work even if I could stand the display tech. I can stand a few min here and there to post a comment. But I cannot spend hours online or on screen anymore. A perfect ironic hit since that was about the only earning potential left and its already cost me the one real shot I have had in years. So often people are facing multiple disabilities from multiple angles.
I hope its helpful although I doubt I said much of substance.